Fibro Fridays – Things I Wish I Knew (After Diagnosis)

I’m taking a little break from protocols (again) to talk about some other things I discovered on my fibromyalgia journey.

Did you all know that getting a diagnosis is just the beginning of the journey? Fibromyalgia is unique in the fact that diagnosis doesn’t automatically result in a clear-cut recovery path. Most of us that have been diagnosed find that there are many things that we still don’t understand about the condition, and most medical professionals are woefully under-exposed/unknowledgeable about fibro. So even after getting a diagnosis, there are a ton of things that we don’t know, and we have to search just to get close to having some answers.

I made a video of the top five things I wish I knew after my fibromyalgia diagnosis. To sum it up briefly, I wish I knew that:

• Most medicines are largely ineffective.
• Lifestyle is the key to managing symptoms.
• This is a problem within the nervous system, not the musculoskeletal system.
• It may be more beneficial to work with a neurologist than a rheumatologist.
• Working with a psychologist as soon as you’re diagnosed can be tremendously helpful.

Here’s the video, where I explain these points more in depth:

Is there anything you all wish you knew when you were first diagnosed with fibro? I’d love to hear about it in the comments below!

Have a great weekend, and I’ll talk to you all next week!