Happy Fibro Friday! I hope you all are doing well! I apologize for the premature postings this week: I’ve been concentrating on Vlog-A-Day-In-May and hadn’t gotten a chance to do much writing over here. Rest assured, the prematurely posted blog will be fleshed out and reposted soon.
Today, I’m sharing a vlog that I posted several weeks ago. In this video, I discussed why it’s important to “speak up” when it comes to your health, especially those that are dealing with fibromyalgia. So many times, our voices are silenced because many medical professionals misunderstand or minimize our experiences. Also, when you suffer from chronic pain, it can be difficult to accurately relay your experiences to medical professionals, which makes it challenging to get diagnoses and treatments.
However, we should always continue to “make a fuss”, sharing how we feel with our care providers and the specialists that we work with. We must persist until our concerns are heard, and we get the treatment that we need.
Happy Fibro Friday! I’m glad that we’ve completed another beautiful week, and I’m hoping that all of you are feeling refreshed and relaxed.
On this fibro journey, one thing that I’d been resistant to was routine. I enjoy doing things at the spur of the moment, and I used to feel that routines kept me from living a fun and spontaneous life. As it turns out, routine has been a saving grace for me. Between getting into the regular habit of taking certain prescription medications, having regularly scheduled visits to physical therapists, and creating better sleep hygiene, I can see where routine is critical to my pain management strategy.
I noticed that I had morning, mid-day, and evening routines that have helped a lot with minimizing my pain and discomfort. So, I took note of my current practices and decided to film my lists. For this week, I filmed my morning routine. You can watch the video here:
The four things I’m currently doing are as follows:
1) Drink 8-16 oz of room temperature water upon waking. I’m always so thirsty when I first wake up, so this is crucial to helping me gently start my day.
2) Complete 5-10 minutes of bed yoga and stretching. Again, starting my day gently is vital: part of keeping my nervous system calm is to avoid overstimulating routines, such as hopping right out of bed and throwing myself directly into the activities of the day. Gentle stretches warm my body up and get me mentally prepared for the day.
3) Moisturize my skin thoroughly. For me, a hyper-sensitive nervous system has meant more sensitive skin. Fabric that was once fine is now uncomfortable against my skin, but I notice that this discomfort is minimized if I’m well moisturized. I use a body butter formulated by one of my friends, but prior to that, I used a light layer of petroleum jelly. It works great and it keeps my skin from getting dry throughout my day.
4) Consume mostly liquid supplements. When I start my day, I’m not usually in the mood for solid or heavy foods. Likewise, I am almost never in the mood for pills or other supplements that cannot be sipped or added into beverages. I try to make most of my morning supplements some sort of liquid: I find these easier to digest and much more effective for me.
This additional point is something that I’d like to try in the upcoming weeks. I have noticed a little more tooth sensitivity than normal, so I’m going to try using a desensitizing toothpaste (like Sensodyne) to help with that. I’ll try it for a few weeks and I’ll follow up to let you all know whether it’s something I’m going to keep in my rotation.
So that’s my morning routine in a nutshell. I find that these steps help me to have a smooth, gentle and effective start to my day.
That’s all for today! Have a great day and a fantastic weekend, and I’ll talk to you all next week. Take care!
Happy Fibro Friday! I hope you all have had a great week. I’m recovering from a mild flare and I’m finally coming out of it, which makes me happy. This is one of those unavoidable things that comes with fibro: even when you’ve done your best to manage your symptoms, you may still have occasional flares. My flare was triggered by inconsistent weather patterns, because when the air goes from hot to cool to warm to cold, my body goes haywire.
Part of what really helps with my flare is getting enough rest, but, as you all know, rest can be challenging when you have fibro. One of the things I use to help get deeper, more restorative sleep is soursop leaf tea. There are a lot of benefits that you can reap from drinking soursop leaf tea, because it’s a highly nutritious plant. The fruit of the soursop plant is delicious and there is a strong case for it being antibacterial, antimicrobial, and anticarcinogenic. But we’re not talking about the fruit: the leaves are what interest me most (when it comes to fibro).
I first learned about soursop leaf tea from Debbie over at The Jamaican Cooking Journey. I’m inserting her video about soursop tea for your convenience:
When she mentioned that soursop tea is good for your nerves, I knew I had to try it! So I did, and I’m so glad that I took a chance on it. It helps me to sleep like a baby! Remeber, fibromyalgia is a neurological issue, not a musculoskeletal one, so by address nerve dysfunction, you can reduce or eliminate most of your symptoms.
I am posting my video that I did on this topic, and in that video, I share my results from consuming soursop leaf tea:
Please note, I am not a doctor and I’m not offering medical advice or solutions. That being said, I’ve enjoyed using soursop leaf tea as part of my regimen to encourage deeper and more restorative sleep. Try it and let me know your results!
Happy Fibro Friday! I hope your week was great, and I hope your upcoming weekend is even better!
Over the past few months, I’ve been keeping close tabs on my fibromyalgia: I’m looking out for new (or recurring) symptoms, any difficulties in recovering after flares, or other changes that may be worth noting. I keep up with these because I stopped using prescription medication a few months back, and this is my first time – since my diagnosis – observing how fibro shows up in my daily life when managed through other methods.
As part of my symptom (and overall health) management, I’ve been incorporating supplements that promise to reduce pain and inflammation in the body. While fibro is not an autoimmune condition, nor is it a condition that is typically associated with inflammation, my research confirmed that inflammatory conditions exist in most people’s bodies, and most of us benefit from the reduction of inflammation. For this reason, I decided to add turmeric into my daily supplements.
Here is my YouTube video discussing fibro and inflammation:
And here’s a YouTube video that I posted earlier today, discussing the outcome of my experiment:
I have to conclude that, while I didn’t notice an immediate or drastic difference in how I felt, I compared the way I felt to how I usually feel in the winter season and I took note of what symptoms were present, missing or mitigated. In previous winters, I am extraordinarily achy, tired and suffer from mild flu-like symptoms, even while taking prescription medication. However, this year, I only felt a little tired and very few aches. I only noticed flu-like symptoms when I actually had the flu (you can read about that ordeal here). So, comparing this year to prior years is the best metric I have, and I can confidently that adding turmeric was a good move for me. I didn’t feel the normal winter “slump” that I usually experience, and I found myself needing less down time when I felt a little tired. I also started adding another supplement into my rotation (more about that next week) and that has been making a difference, too, though I only added that in toward the end of the turmeric experiment, well after I determined how effective the turmeric was for me.
Happy Fibro Friday! A few weeks ago, I published two videos over on my YouTube channel, discussing how I had both flu and COVID simultaneously, and all of the shenanigans involved with that experience. I figured I’d share the videos over here, because you all may have missed my story.
So, let me tell you all how it started. I fell ill right after New Year’s Day, and it took several days for me to get tested (there was a huge demand for COVID testing post-holidays), and I couldn’t get examined for nearly a week after I first started showing symptoms. When I was finally able to get tested, it was confirmed that yes, I had COVID, but I also had the flu (yay me). More about that story, as well as my symptoms are in the video below.
A couple of weeks later, I went back to the doctor’s office to make sure that I was not contagious. I received a rapid test and a flu test, which confirmed that I was no longer sick with COVID, BUT I was still showing as positive for the flu. I was so confused: I should have been done with both viruses at this point. But, the fact that I was still showing as flu-positive opened the door to considering some additional things that were specific to fibromyalgia. Here’s the video discussing that, and I have a few takeaways that I’m going to mentioned after the break.
Here’s the thing: having any chronic health condition means that all of our internal systems are compromised, even on a minute level. But, as we all know, small leaks sink ships. Little “glitches” in our bodies, such as being in a slightly immunocompromised state, often mean that we get unusual results when we’re sick. Unusual outcomes include extended illness, unexpected side effects/symptoms, and biological/physiological damage that cannot be reasonably explained. Sadly, a lack of compassion when sharing our experiences with others is also something that we have to face when we’re recovering from sickness.
So, that’s the sum of my FluRona experience. I’m glad that I’m *finally* over it and feeling great. And I’m really happy that I get to share my experiences and, hopefully, give a little insight to someone else.
That’s it for today: I hope you all are doing great! Have a great weekend.
Now, as I say goodbye to 2021, I look forward to 2022 and how my health will continue to uplevel with the knowledge that I have. You’ll remember how my recent post about what you can expect from Bronze Butterfly mentions the value of implementation over the mere accumulation of facts. And in 2022, using the tips that I learned, seeing how my body reacts, and adjusting accordingly are my priority. I’m temporarily retiring my fact-hunting stance in favor of an action-oriented one. That doesn’t mean that I will refuse all types of knowledge accumulation; after all, I will still need to make observations about my health progress in order to know what kind of adjustments I need to make. But unless I hit a wall with what I know, I don’t think I need to prolong my stay in the research and learning phase.
So, onward and upward to good health and elimination of fibromyalgia symptoms! And I am wishing all of you a healthy, happy 2022, especially those that may be dealing with chronic pain and chronic illness. Take care, and I’ll “see” you all in 2022!
Happy Fibro Friday! I hope you all are doing well and feeling great as we wind down the year.
I’m reflecting on my 2021 health journey as respects my fibromyalgia, and BOY has this been a ride! I’m thankful that I filmed some of my experiences, and I’m sharing those videos here, with you all, as a kind of log of my journey. Here’s some of the Fibro Friday videos I’ve shared in 2021!
I started off the year by outlining some of the unexpected things that happened when you have chronic illness:
Next, I discussed a massage roller tool that I found gave me some relief:
Then, I shared a recipe for a body balm that helps tremendously with nerve and muscle pain (I love this stuff!)
Next, I discussed an action plan for improving my overall wellness.
I talked about things I wish I knew before I was diagnosed (or, that I wish someone had told me about the process of getting diagnosed:
Finally, I talked about my transition off of prescription medication and how I’ve been dealing with my symptoms:
Those are some of my favorite fibro videos for this year, and so excited to see what 2022 has for me! Next week, I’ll be sharing my health goals for the upcoming year and some ideas on how I will reach them.
Did any of you have a favorite video or topic related to fibromyalgia? I’d love for you to tell me about it in the comments below!
Have a great holiday weekend, and I’ll talk to you all on Monday. Take care!
I’m taking a little break from protocols (again) to talk about some other things I discovered on my fibromyalgia journey.
Did you all know that getting a diagnosis is just the beginning of the journey? Fibromyalgia is unique in the fact that diagnosis doesn’t automatically result in a clear-cut recovery path. Most of us that have been diagnosed find that there are many things that we still don’t understand about the condition, and most medical professionals are woefully under-exposed/unknowledgeable about fibro. So even after getting a diagnosis, there are a ton of things that we don’t know, and we have to search just to get close to having some answers.
I made a video of the top five things I wish I knew after my fibromyalgia diagnosis. To sum it up briefly, I wish I knew that:
Most medicines are largely ineffective.
Lifestyle is the key to managing symptoms.
This is a problem within the nervous system, not the musculoskeletal system.
It may be more beneficial to work with a neurologist than a rheumatologist.
Working with a psychologist as soon as you’re diagnosed can be tremendously helpful.
Here’s the video, where I explain these points more in depth:
Is there anything you all wish you knew when you were first diagnosed with fibro? I’d love to hear about it in the comments below!
Have a great weekend, and I’ll talk to you all next week!
Happy Friday, friends! We’re back to protocols, after taking a break for the past few Fibro Fridays. As with the other protocol reviews, I’ll be pointing out the philosophy of the healthcare professional/coach/holistic health practitioner, highlights of the protocol, and my thoughts about the protocol.
This week I’m diving into the work of Irene Lyon. Lyon is a nervous system expert that uses somatic neuroplasticity principles to help her clients “rewire” their brains to eliminate the effects of various types of trauma. She has a website with free resources to help people attempting to get to the root of their pain disorders. Also, she has a YouTube channel where she goes into depth with discussing healing principles and techniques. Lyon has degrees in exercise science and biomedical science, as well as 20+ years of practice related to healing the body through somatic experiencing, or how to correct nervous system dysregulation in order to resolve physical and psychological illnesses.
Because Lyon’s work is designed to treat a multitude of illnesses, she doesn’t have a specific protocol for fibromyalgia. However, she has a video where she shares how one of her viewers was able to utilize resources available through Lyon’s website, as well as her video library, to start and progress on her healing journey.
Some of the healing principles promoted by Lyon are as follows:
Healthy emotional expression is central to healing physical pain.
Understanding the sympathetic and parasympathetic nervous systems and responses are crucial to managing pain.
Physical pain is almost invariably rooted in trauma.
It’s possible to rewire the brain in order to train it to have a more regulated response to stressors.
I think there are a lot of solid points to Lyon’s protocol, though I feel it would work best when combined with another treatment plan. For anyone that has tried the more traditional healing protocols (with minimal success), this may be a great option to explore.
Are any of you familiar with Irene Lyon’s work? I’d love to hear about it in the comments below! Have a great weekend, and I’ll talk to you all soon.
Happy Fibro Friday! I’ve been working on a few things behind the scenes, but I couldn’t end this week without sharing another protocol that I saw recently on YouTube.
I know that you all may be a bit weary of Fibro Friday protocols by now (I’ve reviewed 6 so far), but I have a few more to share, then I’ll be doing this far less frequently. I’m really focused on providing as much information as possible, so that there is a consolidated list of ideas for effectively treating fibromyalgia.
Also, as you all know, curing my fibromyalgia is one of my goals for the year. I want to get as much information as possible so that I can create a plan that eliminates my symptoms and helps me return to good health. So I’m doing my research so that I can craft a plan that really helps me to feel my best and finally get my symptoms under control.
Today’s protocol is the Wylde Protocol, as promoted by Dr. Bryce Wylde. Dr. Wylde is a Canadian alternative medicine expert who take a functional medicine approach to treating fibromyalgia. While Dr. Wylde has spoken extensively on a range of health conditions, I could only find one video where he specifically addresses fibromyalgia. I’m linking the video below.
Some of Dr. Wylde’s recommendations are:
Avoid sugar, gluten, nitrates, nitrites, aspartame, and nightshades (such as tomatoes and potatoes)
Try elimination then reintroduction to determine if there is a food allergy or inflammation at the root of the pain
Supplement with d-ribose, chlorella, fatty acids, and magnesium
Seek out functional medical practitioners to determine the root of the fibromyalgia
I find that Dr. Wylde’s recommendations are in line with some of the other protocols that I’ve reviewed (particularly, the PainFreeKitchen Protocol and the Mandell Protocol). Elimination diets are always a good idea, especially since these offer a way of determining whether there are food sensitivities that may aggravate fibromyalgia symptoms. Also, supplements are really good for ensuring that the body is getting the raw materials it needs to function better on the cellular level.
That’s it for today. I hope you all are having a great, pain-free day, and I wish you a fantastic weekend. Take care, and I’ll talk to you all soon!