health · life curation

Fibro Fridays – My Current Favorite Fibro Vloggers

Happy Fibro Friday! We made it to the end of another week, and what a week it’s been! I’m looking forward to a quiet and restful weekend with my family, because I need a little downtime.

But anyhoo, back to Fibro Friday. Today, I’m sharing some of my favorite fibro vloggers. These lovely souls have generously shared their fibromyalgia journeys on YouTube, and I’m thankful for the knowledge, encouragement, and inspiration they’ve provided. A few of them have fibromyalgia-centered channels, while others discuss fibro occasionally, while vlogging about the rest of their lives.

If you’ve watched any of these vloggers, then you know that they have great content and are joys to watch. I hope this list of vloggers gives you some great ideas on how to manage your fibromyalgia symptoms and a heaping dose of encouragement.

In no particular order:

Grace at Home – she doesn’t post frequently, but she shares some really sound information on her fibro experience. The symptoms she mentioned are almost identical to mine. She was one of the first Black women fibro vloggers that I found on YouTube. That actually speaks to another issue when it comes to chronic illness (gross underdiagnosis and misdiagnosis of WOC, especially Black women), which I’ll discuss in a future Fibro Friday post. This video describes, in detail, how fibro feels. It’s great information for anyone that doesn’t understand the pain that fibromyalgia patients experience.

Marla Robinson – Marla’s channel has all sorts of lifestyle goodies, and I love the fact that she’s a mature YouTuber. Aside from that, she gives wonderful information on her fibromyalgia and other chronic illness journey, as well as the treatments that have worked for her, as well as what has been ineffective. She does a fabulous job explaining her journey, so for anyone that wants a very thorough explanation, this is a great channel to view.

Chronically Emily – While fibromyalgia is a devastating condition at any age, it’s especially disheartening to see younger people with the condition. There is a particular sadness that I feel when I see young people that are impacted so significantly by chronic illness, because I know that they won’t get to experience a pain-free young adulthood. However, dear Emily seems to take it all in stride and is living a wonderful, full life in spite of her pain. I enjoy hearing how she’s doing (she has multiple chronic conditions) and seeing her embrace new chapters and experiences in her life.

Olga Chronics – This charming channel centers around Olga’s chronic illnesses (mainly, fibromyalgia and IBS) but she also shares her other interests, such as reading books and spending time with her adorable pup. She goes into some of the ways that she is personally impacted by fibro, and she goes to great lengths to offer possible solutions to her subscribers. I also love that she gives her viewers a peek into how Portugal and its health system treats fibromyalgia patients.

Adventures with Fibro – Deena embodies living an active life while still taking care of herself and managing her fibromyalgia. She is an avid hiker and gives wonderful tips based on her 17(!) years of fibor experience. Deena does a great job of discussing some of the mental health aspects that can be affected by fibro (many people diagnosed with this condition also have to deal with anxiety and depression).

Lord and Lordettes – Nicola splits her channel between fibromyalgia-related content and family/lifestyle vlogging. She has a fibro-related post every Wednesday, and she takes her time to discuss a singular specific symptom in these videos. I also appreciate hearing how fibromyalgia is treated in the UK (as a US-based fibro patient, I’m always curious about which countries have better/more innovative care for invisible illnesses. US treatment approaches are mediocre in many ways, and absolutely nonexistent in other ways.)

A Life I Choose – This channel focuses on overall wellness, but the hostess, Emma, also discusses how she mitigated her fibromyalgia. I think that one key advantage that Emma has is a background as a psychotherapist, so she has extensive knowledge on how to condition the brain in a way that promotes healing and (possibly) minimizes pain. She has (if I recall correctly) successfully transitioned herself off of fibromyalgia medications and lives a normal life with minimal pain.

health · life curation

Fibro Friday – How I Made Peace With My Diagnosis

Welcome to this week’s Fibro Friday! For those that are curious, I enjoy discussing an aspect of my fibromyalgia experience every week. This condition is more than a diagnosis: it’s a shift in my way of life. But as I continue to learn my “new normal”, I find myself seeing the silver lining every single day. And, if my experience can offer a silver lining for someone else, then I’m delighted that I can make this path easier for another person.

One of the most difficult things about learning that I have fibromyalgia is making peace with my diagnosis. It’s so easy to rebel against the diagnosis and throw myself into a cycle of over-extension, then drastically long recovery periods. I resisted this diagnosis for over a year. I would have one good day, try to do as much as I can, then I’d spend the next week in bed because my body ached terribly and my mental faculties weren’t up to par.

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I resisted the diagnosis because I hated feeling “less than”. I hated the fact that I had limitations. I really despised being face-to-face with my own frailty and, by extension, my mortality. I hated the fact that I wasn’t who I used to be, and there was nothing that I could do about it.

When you hit your lowest lows, that’s the point where you learn to release your death grip on your beliefs and to accept that your own resistance is what’s keeping you in your pain loop. Those lows teach you so much, but, mainly, they teach you to let this moment, and every moment you experience, be enough. When the moment is enough, you no longer obsess over why. You lean into the experience, and, just like magic, the solutions to your problems start to appear.

For me, the moment I started resisting my pain and just allowed it to be so, I felt a measure of relief. After that, the relief increased steadily. I’m not pain-free yet, but being present in the moment and observing my body – its pain, fatigue, mental fog, and inability to perform tasks like it used to – without judgment, freed me up to find solutions to my pain. My medication started feeling more effective, my mind started to clear a bit, and I started taking note of what physical activities felt like “just enough”, and which activities were overdoing it.

Instead of resisting my diagnosis and judging myself, I started approaching my diagnosis like a clinician. I analyzed my symptoms from a neutral standpoint, and, eventually, I started treating myself better than any doctor could. Much of my peace from my diagnosis is centered around the fact that I view it as neutrally as possible, which allows me to accept the symptoms without villainizing them, and to forgive myself for not treating my body as well as I could have over the years. When you know better, you do better. And I’m finally doing better by my body, which only came on the heels of accepting my diagnosis and moving forward.

That’s it for today. I hope this post encourages you and inspires you to make peace with the things that you can’t change, and to allow that peace to open the door for relief and solutions to whatever bothers you. Take care, and I’ll talk to you next week!

health

Fibro Fridays – Pain Management Tools

Happy Fibro Friday! We made it through another week: let’s celebrate!

I’ve been trying some new pain management tools over the past few weeks. These have helped me with some of the chronic pain symptoms that come along with having fibromyalgia. I really liked these items that I’m sharing today, so if you have fibromyalgia, or if you experience chronic pain, these may be worth a try.

First, I have the Nayoya Acupressure Mat and Neck Pillow set. At just under $40 USD, it’s a great item to try for some pain relief. I was going to review it, but Deena of Adventures with Fibro on YouTube (YT) beat me to it! Her review was great, so I’m going to link it here, but I’m also going to embed it in this post.

Now, there’s another tool that I’ve enjoyed using, and not only is it effective, but it’s reasonably priced, too. This tool is less than $20 USD currently, and I’ve loved using it to relieve some of the nerve pain I experience. It’s the La Vie Lactation Massage Roller.

Before you get any ideas . . . No, I’m not lactating! This massager is gentler than many other massage devices, which is crucial when your chronic pain is intense. Here’s the review of the lactation massage roller that I posted on my YT channel:

If you’re curious about the variety of tools that may be needed for those that live wtih fibromyalgia or chronic pain, you should check out Olga Chronics on YT. She is so thorough, and she’s charming to boot. I really liked her video on mobility aids (which I’m embedding below). I don’t use mobility aids, but it’s good information for anyone that has impacted mobility due to chronic pain or fibromyalgia.

Do you have any tools that you can recommend for pain management? I’d love to hear about it in the comments below!

*Post contains affiliate links.