health · life curation

Fibro Fridays – My Current Favorite Fibro Vloggers

Happy Fibro Friday! We made it to the end of another week, and what a week it’s been! I’m looking forward to a quiet and restful weekend with my family, because I need a little downtime.

But anyhoo, back to Fibro Friday. Today, I’m sharing some of my favorite fibro vloggers. These lovely souls have generously shared their fibromyalgia journeys on YouTube, and I’m thankful for the knowledge, encouragement, and inspiration they’ve provided. A few of them have fibromyalgia-centered channels, while others discuss fibro occasionally, while vlogging about the rest of their lives.

If you’ve watched any of these vloggers, then you know that they have great content and are joys to watch. I hope this list of vloggers gives you some great ideas on how to manage your fibromyalgia symptoms and a heaping dose of encouragement.

In no particular order:

Grace at Home – she doesn’t post frequently, but she shares some really sound information on her fibro experience. The symptoms she mentioned are almost identical to mine. She was one of the first Black women fibro vloggers that I found on YouTube. That actually speaks to another issue when it comes to chronic illness (gross underdiagnosis and misdiagnosis of WOC, especially Black women), which I’ll discuss in a future Fibro Friday post. This video describes, in detail, how fibro feels. It’s great information for anyone that doesn’t understand the pain that fibromyalgia patients experience.

Marla Robinson – Marla’s channel has all sorts of lifestyle goodies, and I love the fact that she’s a mature YouTuber. Aside from that, she gives wonderful information on her fibromyalgia and other chronic illness journey, as well as the treatments that have worked for her, as well as what has been ineffective. She does a fabulous job explaining her journey, so for anyone that wants a very thorough explanation, this is a great channel to view.

Chronically Emily – While fibromyalgia is a devastating condition at any age, it’s especially disheartening to see younger people with the condition. There is a particular sadness that I feel when I see young people that are impacted so significantly by chronic illness, because I know that they won’t get to experience a pain-free young adulthood. However, dear Emily seems to take it all in stride and is living a wonderful, full life in spite of her pain. I enjoy hearing how she’s doing (she has multiple chronic conditions) and seeing her embrace new chapters and experiences in her life.

Olga Chronics – This charming channel centers around Olga’s chronic illnesses (mainly, fibromyalgia and IBS) but she also shares her other interests, such as reading books and spending time with her adorable pup. She goes into some of the ways that she is personally impacted by fibro, and she goes to great lengths to offer possible solutions to her subscribers. I also love that she gives her viewers a peek into how Portugal and its health system treats fibromyalgia patients.

Adventures with Fibro – Deena embodies living an active life while still taking care of herself and managing her fibromyalgia. She is an avid hiker and gives wonderful tips based on her 17(!) years of fibor experience. Deena does a great job of discussing some of the mental health aspects that can be affected by fibro (many people diagnosed with this condition also have to deal with anxiety and depression).

Lord and Lordettes – Nicola splits her channel between fibromyalgia-related content and family/lifestyle vlogging. She has a fibro-related post every Wednesday, and she takes her time to discuss a singular specific symptom in these videos. I also appreciate hearing how fibromyalgia is treated in the UK (as a US-based fibro patient, I’m always curious about which countries have better/more innovative care for invisible illnesses. US treatment approaches are mediocre in many ways, and absolutely nonexistent in other ways.)

A Life I Choose – This channel focuses on overall wellness, but the hostess, Emma, also discusses how she mitigated her fibromyalgia. I think that one key advantage that Emma has is a background as a psychotherapist, so she has extensive knowledge on how to condition the brain in a way that promotes healing and (possibly) minimizes pain. She has (if I recall correctly) successfully transitioned herself off of fibromyalgia medications and lives a normal life with minimal pain.

health

Fibro Friday : My Magical Body Balm for Muscle and Nerve Pain Relief

Happy Fibro Friday, friends! I sincerely hope that you’ve had a great week, and I hope that your weekend is amazing!

Recently, I shared with one of my favorite vloggers, Deena from Adventures with Fibro, that I make a body balm that helps with both muscular and neurological pain. I also promised her that I would make a video. And yes, I kept my word.

If you have fibromyalgia, you are already intimately aware of the pain that occurs due to the condition. But if you don’t have the condition, I’ll try my best to explain it to you. The pain that comes from fibromyalgia is often diffuse: it’s not usually concentrated into just one spot. And the pain goes beyond just soreness (as if you overused a particular muscle group): the pain can include stinging, burning, prickly, tingly, or throbbing sensations.

Many of the products available for pain address the muscle component exclusively. So the neurological pain (or neuropathy) remains unaddressed. You usually have to use medication prescribed by a neurologist or a rheumatologist to alleviate the nerve pain. Sadly, these medicines do a poor job of offering relief, and can have a range of awful side effects.*

So I opted to create a product that could give me relief for both body systems (musculoskeletal and nervous). In this video, I give a nice, customizable recipe that can offer you some relief and hopefully make your flare days a little more tolerable. I’m writing out the recipe and instructions on this post, to be followed by a link to the video.

Magic Body Balm (makes 4 ounces (120 ml) of product)

  1. A few weeks prior to making this balm, purchase dried arnica and place 1 or 2 ounces of the dried plant into 2-3 ounces of avocado oil. Let it sit for several weeks in a dark, cool spot, gently shaking the oil every couple of days.
  2. Start by placing the nut butter into the glass bowl.
  3. Fill the bottom of the shallow bowl with less than 1 inch of boiling hot water. You only need enough hot water to cover the bottom of the shallow bowl.
  4. Place the glass bowl with the nut butter into the shallow bowl, allowing the hot water to heat the bottom of the glass ramekin and start melting the butter.
  5. THIS IS CRUCIAL – Avoid getting any water into the liquefying nut butter, the oil additives, or any other ingredients. This will prevent bacteria from growing in the balm.
  6. While the nut butter is melting, strain your arnica infused oil. (Skip this step if you’re using pure arnica oil that you purchased).
  7. Once the nut butter is liquefied, combine it with the arnica infused oil (or the pure avocado oil and arnica oil drops), copaiba oil, davana oil, and fragrant oil of your choice (I prefer tangerine, lavender or peppermint oil). Stir well.
  8. Pour the mixture into the container of choice. Place in a refrigerator to let it cool and set (roughly 1-2 hours). Remove and use on achy, sore body parts.

This recipe is mostly relying on eyeballing the measurements, so if it isn’t exact, try adjusting individual ingredients until you get the consistency you prefer. I’m linking the ingredients and tools above, so you can easily get what you need. I hope this helps you! Take care, and enjoy your weekend.

* Disclaimer: I use two medications for neurological symptoms. I weighed the efficacy versus the side effects, and I determined that it was worth the risk. Discuss the options with your doctor to see what is recommended for your condition.

This post contains affiliate links.

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Fibro Fridays – Pain Management Tools

Happy Fibro Friday! We made it through another week: let’s celebrate!

I’ve been trying some new pain management tools over the past few weeks. These have helped me with some of the chronic pain symptoms that come along with having fibromyalgia. I really liked these items that I’m sharing today, so if you have fibromyalgia, or if you experience chronic pain, these may be worth a try.

First, I have the Nayoya Acupressure Mat and Neck Pillow set. At just under $40 USD, it’s a great item to try for some pain relief. I was going to review it, but Deena of Adventures with Fibro on YouTube (YT) beat me to it! Her review was great, so I’m going to link it here, but I’m also going to embed it in this post.

Now, there’s another tool that I’ve enjoyed using, and not only is it effective, but it’s reasonably priced, too. This tool is less than $20 USD currently, and I’ve loved using it to relieve some of the nerve pain I experience. It’s the La Vie Lactation Massage Roller.

Before you get any ideas . . . No, I’m not lactating! This massager is gentler than many other massage devices, which is crucial when your chronic pain is intense. Here’s the review of the lactation massage roller that I posted on my YT channel:

If you’re curious about the variety of tools that may be needed for those that live wtih fibromyalgia or chronic pain, you should check out Olga Chronics on YT. She is so thorough, and she’s charming to boot. I really liked her video on mobility aids (which I’m embedding below). I don’t use mobility aids, but it’s good information for anyone that has impacted mobility due to chronic pain or fibromyalgia.

Do you have any tools that you can recommend for pain management? I’d love to hear about it in the comments below!

*Post contains affiliate links.