Tag: #fibromyalgia

health

Fibro Fridays – Is It Possible to be “Cured”?

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Happy Fibro Friday, friends! My apologies for the premature earlier posting: I was still typing when it posted LOL!

We made it through another week. Here in Virginia, we’ve enjoyed some warmer temperatures this week, and for that, I’m thankful! I hope you all are doing well and feeling great.

As I’ve been watching various fibromyalgia-related videos, I keep coming back to the question of whether this condition can be “cured”. It has been my goal, since I was first diagnosed, to be “cured” and completely free of the symptoms of fibromyalgia. As I understand it, a “cure” is not about managing the symptoms, but actually being completely rid of them.

Many of the experts I’ve watched have indicated that this is a lifelong, chronic condition. But I’ve also seen a handful of experts that believe fibromyalgia can be reversed, or cured. Here are some of the factors that contribute to whether an individual experincing fibro can reverse his or her symptoms?

  • The unshakable belief that fibro is a reversible condition.
  • A willingness to do a deep-dive into the factors that created a fibromyalgia condition.
  • An openness to try a variety of treatments that go beyond simply using prescription medication.
  • The decision to live a life that supports continued wellness (no more self-sabotage)
  • An understanding that there may be a significant time investment involved

Anyone attempting to get close to a “cure” for this condition cannot delude themselves into thinking this will be easy or quick. Just as this condition can be rooted in a myriad of different factors, the solution can come from any number of adjustments or re-directions. If the solution was easy to figure out and implement, more people would do it, and there would be no need for me to analyze all these different protocols weekly, just to see if I can piece together a workable plan.

And even once you get a “cure”, there are often things that need to occur in order to maintain a state of wellness. So even the notion of a “cure” isn’t quite accurate: it’s a fix for a problem that can reappear if you aren’t careful. But, even a temporary “cure” is preferable to living with this condition daily.

In conclusion, “cure” is a bit of a misnomer, but the effects of a possible “cure” are worth the effort. It isn’t an easy path, but I’m committed to seeing it through.

That’s all for today, friends! I hope you all have a safe and comfortable weekend. I’ll talk to you all on Monday!

health

Fibro Friday – Parenting When Chronically Ill

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Happy Fibro Friday! I hope that you all had a healthy, restful and restorative week. As I briefly mentioned in a previous post, this time of year can be difficult for fibro warriors because of the temperature changes. For that reason, as well as others, I hope you all are continuing to take good care of yourselves.

Recently, I was asked a question that I’d been asked before, but this time, I thought more carefully about my response. The question referred to how I manage being a parent as a chronically ill person. When I’d been asked this question in the past, I simply mentioned that I do the best I can, and I rely heavily on my support team. This is still true, but it’s not a full explanation of what it’s like to be a parent (and, in my case, a divorced mother that is not supported in any way by my former spouse) when your health is less than stellar on a daily basis.

To put it bluntly, my parenting experience has been tremendously frustrating and, on many days, heartbreaking. I feel frustrated with myself because I want to have more energy to do all of the things that my child enjoys. I also get angry with myself because I can’t always remember everything that needs to be done, so I end up having to scramble to take care of the things that I need to do for her. I’ve cried countless times over how overwhelming this entire experience has been, and how I could be a much better mother if I simply wasn’t so sleepy, or achy, or forgetful, or overwhelmed. There are a lot of moments that leave me feeling like a failure.

I have to constantly remind myself that I’m doing the best that I can, and I don’t believe myself 75% of the time, because my “best” isn’t as good as it could be if my health was better. Many days, I check in with my support system (family and friends) who assure me that I’m doing a good job. But, I still don’t believe it. It’s hard to believe these things when comparing yourself to others who have demanding schedules yet still seem to always have the time and energy that their children require.

It’s key to remember that comparison is the thief of joy. So when the comparisons come to mind, I try to remember what I’m doing right. On many days, the list is disappointingly brief. Sometimes, the only thing I may have done right during a day is give a hug in the morning. But even that is worth noting. I communicate with my child and ask plainly what I should improve to become a better mom, but “nothing” is always the answer I receive.

I’m already a better mom, even when I don’t feel like I am.

I took some time to recall how my own mother suffered from chronic migraines while I was growing up, and even when I couldn’t talk to her (during those moments when she needed to lay down in a quiet, dark, cool room until she felt better), I never thought that she was failing at being a parent. I always knew that she loved me, regardless of how unavailable she was when she was unwell. So during those times when I can’t believe myself, I choose to believe my child, and I also choose to believe my younger self, who never felt that her mom was a failure simply because she was sick.

So to answer the question, parenting as a chronically ill person is the worst thing I could ever have experienced. It’s also one of the most humbling experiences I’ve ever had, and it forced me to appreciate those moments when I get it right. It’s a difficult path but it’s been amazing for me to learn that the role of parent isn’t about metrics or checking off all of the tasks on a to-do list. Sometimes, it’s just a hug, or texting a funny GIF, or putting on a song and dancing together (before the exhaustion takes over). It’s showing your child how to do a chore for themselves, or allowing your child to help you with the things that you have to do around the home so that you have help and good company. It’s not about doing all of the things, but how you do the things.

It’s complicated, but it’s my life. And my only choice is to work with it as best as I can, just as I’ve done with everything else I’ve experienced this life.

That’s it for today. If this post wasn’t as informative or cheery as my Fibro Friday posts usually are, just be assured that I’ll be back to the normal scheduled topics next week. But this was on my mind, and I felt like I needed to share it. Also, I hope that this post can offer a little encouragement to the other fibro parents out there, that are trying to convince themselves that they are doing a good job. You are, even when you don’t feel like it.

Take care, and have a great weekend.

health

Fibro Fridays – Why So Many Symptoms?

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Happy Fibro Friday! To all of my fibro family out there, I hope that you all are having a pain-free day, full of energy and zero fibro fog. And, if you are having a not so great day, I hope you’re able to rest a bit and give yourself what you need to feel better <sending hugs>

As the seasons change, I know that many people diagnosed with chronic pain conditions notice an uptick in their discomfort. While not every fibro warrior experiences discomfort from the same weather stimuli (some difficulty when the weather gets hotter, while others struggle with cooler temps), it should be noted that weather changes are generally hard on everyone, but the effect is amplified even more so when you have a chronic pain condition like fibromyalgia.

I am one of those people that doesn’t enjoy the cooler weather for various reasons, with increased fibro symptoms being my main reason for disliking autumn and winter. As I reflected on ways to make the seasonal transition a little less shocking on my body, I thought about the many symptoms that I need to consider when coming up with a game plan for the cold months. I thought about how I need to increase my iron intake, so that any fibro symptoms wouldn’t be worsened by being anemic. I pondered what my morning routine need to include, in order to help properly warm up my muscles upon waking, without overexerting myself. I considered the textures of certain clothing and linen, and how some of them felt painful against my hypersensitive skin and how these needed to be given to a thrift store instead of staying in my wardrobe and linen closet. I thought about warming essential oils that I could add to my muscle balm, so that it’s more comfortable to apply.

These thoughts are what led me to the topic of this post. Thinking about all of the symptoms that needed to be managed during the fall and winter brought to mind how all of my fibro family have to make adjustments with each seasonal change, that go beyond putting new pillows on the couch and changing out the floral arrangements in the house. I mean, I understand having fibromyalgia symptoms, but why are there so many symptoms? According to one YouTuber that I follow, fibromyalgia has been attributed to around 200 distinct symptoms that fibro warriors experience.

Let that number sink in.

200 symptoms is literally one symptom each day for more than half of the year. Just think of having one distinct, random, uncomfortable thing happen to you daily for the first 6 months of the year, then for another 3 weeks, just for good measure. Those are the possibilities that exist when you have fibromyalgia.

Thankfully, the average fibro warrior experiences the main, classical symptoms of the condition, and only a few of the “extra” symptoms in the average day. Altogether, these total less than 20 symptoms on average. However, the potential to experience all of the symptoms over the duration of the condition (which, for the majority of us, is the remainder of our lives) is there. The good news is that you probably won’t ever have more than 50 symptoms in any given day. The bad news is that you’ll probably live long enough to have a brush with most of the 200 or so symptoms that have been documented as possibly being attributable to fibromyalgia.

There is a good reason why fibromyalgia can be linked to so many symptoms. Fibromyalgia isn’t a muscle condition: it’s a neurological issues that shows up as musculoskeletal pain, cognitive dysfunction, and extreme fatigue (along with a slew of other things). The nervous system, which includes our brains and spines, affect every other system within the body. A little nerve dysfunction can make an entire body system go off of the rails, so it’s not a huge stretch to understand that fibromyalgia could mean haywire internal temperature regulation, irritable bowel syndrome (IBS), anxiety and depression, irrational pain, skin sensitivity, headaches, etc.,.

In short, a fibromyalgia diagnosis could mean a grab bag of assorted symptoms that don’t make much sense when considered individually, but make perfect sense when set against the backdrop of fibromyalgia. Fibro is the tie that binds all of these symptoms together.

That’s all for Fibro Friday! I hope you all have a safe and enjoyable weekend. Take care, and I’ll talk to you all on Monday!

health

Fibro Friday – The Mandell Protocol

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It’s another Fibro Friday! I’m feeling pretty good after having a much less intense week than normal. I rested more, I had fewer tutoring students, and I started my yoga routine again, so life has been great. I’m excited to be back to share another protocol with you all today!

Today’s post will be about Dr. Alan Mandell, a Floridian chiropractor that has a very popular YouTube channel. Dr. Mandell, similarly to fellow chiropractor, Dr. Eric Berg (who has a protocol that I reviewed last week), has offered the path of overall lifestyle improvement as a way to relieve the pain of fibromyalgia. Dr. Mandell, like Drs. Berg, Berry (reviewed here), and Liptan (reviewed here), agrees that it is possible to make lifestyle adjustments (as opposed to relying strictly on prescription medication) in order to minimize and possibly eliminate fibromyalgia symptoms.

I enjoyed Dr. Mandell’s video, because he clearly explains a point about fibromyalgia that some medical professionals may not emphasize, and I think it’s a critical part of understanding why diagnosis and treatment are so difficult to obtain. Fibromyalgia is a syndrome, not a disease, so it is a body of symptoms that cannot be attributed to other sources. It is a condition that is diagnosed after an extensive process of elimination has been undertaken by a medical professional. It is possible that a person that appears to have fibromyalgia may experience relief after being treated for common comorbidities, such as rheumatoid arthritis, various other autoimmune conditions (like lupus, inflammatory bowel disease (IBD), celiac disease, or Sjogren’s syndrome), or depression. Because it is easy for these symptoms to exist throughout multiple conditions, it’s important to assess a patient thoroughly before assigned a fibromyalgia diagnosis. While this is a frustrating process for patients, it is the best practice for ensuring that an accurate diagnosis is reached.

Here is Dr. Mandell’s video on fibromyalgia:

Here are some key takeaways from the video:

  • Focus on decreasing inflammation in the body, as well as reducing stress
  • Seek alternative treatments, such as chiropractic care, massage (especially myofascial release), meditation, exercise and nutrition
  • Reduce omega-6s in the diet (commonly found in corn oil, sunflower oils, sugars found in desserts, whole grains, fast food, etc.,)
  • Increase omega-3 foods in the diet (flax seed, chia seed, fatty fish, or supplements like cod liver oil and krill oil)
  • Increase vitamin D3 and magnesium intake, as well all of the B vitamins
  • Explore herbal supplements, such as chamomile and valerian root
  • Be mindful of your physical posture and ergonomics

My overall impression of the Mandell Protocol is, it’s nothing “brand new” when compared to the other protocols. However, the recommendation of specific herbs as well as the encouragement to improve physical posture for pain relief were points that I hadn’t heard previously. As always, I believe that, even if the information isn’t “brand new”, sometimes it pays to hear the same information explained from someone different, in order to get additional clarity.

Are any of you familiar with Dr. Mandell? Have you tried any of his recommendations for fibro pain relief? I’d love to hear about it in the comments below!

goals · health

Fibro Friday – The Berg Protocol

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Happy Fibro Friday! I always love sharing information and updates regarding the world of fibromyalgia, but I realized as I started typing this post that I haven’t provided an update on my personal health. I think I am overdue for a discussion about my fibro journey and experience. So I’ll give you a brief update on my health, then I’ll dive into the Berg ProtocoI haven’t been in much pain recently, and my energy levels, while lower than I’d like, are stable. I’m still using gabapentin and I haven’t felt a need to increase my dosage. I’m thankful that I am still in the low dosage range and haven’t needed to implement any additional pain relievers. Overall, so far, so good.

Now, back to today’s topic. Today we’re exploring the recommendations for treating fibromyalgia that are promoted by Dr. Eric Berg. Dr. Berg is a chiropractor that offer his health perspective and recommendations on YouTube. I would be remiss if I didn’t discuss the fact that Dr. Berg is at the center of a controversy involving his son, Ian. Ian revealed that Dr. Berg is a Scientologist and a narcissist that mistreats individuals that decide to leave the Church of Scientology. These facts have given me pause when it comes to purchasing Dr. Berg’s products, and even promoting his videos can be an indirect way of supporting him. Further, I don’t want to victimize Ian further by indirectly supporting his father.

That being said, I want to add that disclaimer so you can decide whether you want to continue reading this post or whether you want to skip this week’s Fibro Friday. I don’t want to skip over the statements against Dr. Berg just because he offers solutions that may work for one of us fibro warriors. Dr. Berg offers some treatment options for fibromyalgia that may be worth considering, especially for those of us who prefer natural and alternative treatments. While Dr. Berg doesn’t have a large collection of videos dedicated to fibromyalgia, he does have a few videos discussing conditions that may be misdiagnosed as fibro. Also, he provides tips on reducing chronic fatigue and pain that comes along with fibromyalgia. Here is one of Dr. Berg’s videos that you may find informative:

The Berg Protocol can be summarized as follows:

  • Consider whether your fibromyalgia may be related to a congested gallbladder; if so, start supporting healthy gallbladder function to get relief
  • Increase vitamin D3 intake in order to reduce or eliminate pain
  • Try acupressure for relief
  • Ketogenic dieting and intermittent fasting are recommended

I think that Dr. Berg’s recommendations are very similar to Dr. Berry’s statements (which I reviewed last week). However, Dr. Berg’s experience as a chiropractor means that his perspective originates from a different point that Dr. Berry (who is a MD). While I haven’t explored all of Dr. Berg’s recommendations, I have been increasing my vitamin D3 intake and it does seem to give me a bit of an energy boost (though my chronic fatigue is still in full effect).

That’s all for my brief overview of Dr. Berg’s protocol. If you’ve implemented any of his tips, I’d love to hear about your experience in the comments below.

Have a great weekend! I’ll talk to you all soon.

food · health

Fibro Friday – The Berry Protocol

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Happy Friday! We made it through another week, and boy, what a week it’s been! I entertained a few of my younger relatives for four days, and those little ones WORE ME OUT! I loved having them around, so, despite being exhausted, I will certainly have them visit again very soon!

Anyhoo, today is Fibro Friday, so we’ll be discussing another protocol that may offer some fibromyalgia relief. Today’s post looks at the protocol promoted by Dr. Ken Berry. I first mentioned Dr. Berry a few weeks ago, in the Fibro Friday post discussing some of the latest fibromyalgia research. I’ve been following Dr. Berry for a few years now, and I enjoy his practical wisdom about healthcare and living optimal lifestyles. Dr. Berry has been practicing medicine for over 20 years, and he encourages his audience to adjust their diets and daily habits in order to reduce or eliminate symptoms from chronic illnesses.

Dr. Berry has multiple videos addressing his approach when it comes to fibromyalgia treatment. He recommends a ketogenic diet, as well as going through the steps of determining whether you actually have fibromyalgia (requesting specific lab work to ensure that you haven’t been misdiagnosed). Here is Dr. Berry’s protocol, explained by the doctor himself:

Some of the key takeaways for me were:

  • Focus on rebuilding health cells and healthy myelin sheaths
  • Remove as much processed carbohydrates from the diet as possible
  • Pay attention to “sneaky” carbohydrates that spike blood sugar, such as honey, agave nectar, tubers and other starchy vegetables
  • Eat lots of healthy fatty options, like high-quality meats and seafood
  • Determine if you have other underlying issues, such as hypothyroidism or depression, that may have symptoms that can be confused with fibromyalgia
  • Check both your A1c and C-Peptide levels, to determine if you are experiencing symptoms related to elevated levels

Dr. Berry’s recommendations are worth a try, especially if you are curious about reducing your fibromyalgia pain without relying upon prescription medication. I appreciate the fact that Dr. Berry doesn’t promise a “cure”, but he advises his viewers that starting with his recommendations may provide significant relief for fibro symptoms.

Have you heard of Dr. Berry before? Have tried any of the tips that he outlines in his video? I’d love to hear about your experiences in the comments below.

Have a fantastic weekend, friends! I’ll talk to you all soon.