Tag: #fibro

Fibro Friday – How I Created a Flare
health · relaxation · travel

Fibro Friday – How I Created a Flare

MstldelanoLeave a comment

Happy Fibro Friday! After an emotionally intense few days (I didn’t mention it in previous posts, because I like to focus on joy and ease in this space), I’m feeling so much lighter and happier! As today is Fibro Friday, I wanted to share a story about how I created a fibro flare right before my travels in June.

The excitement and stress of preparing to travel created the first real “flare” that I’d experienced in a while. I’d had achy or uncomfortable days, but I hadn’t felt like I was in a true “flare” in quite some time. So I was surprised when I noticed I had all of my typical flare symptoms: achiness all over; pain in my neck, back, shoulders, wrists, and forearms; brain fog; exhaustion; queasiness; pins and needles in my hands and feet; skin sensitivity, sore throat and dizziness. It has been a LONG time since I had this many symptoms at once, and it was not fun at all!

After noting that my normal activity caused leg soreness, and seeing that the transition to warmer weather was making me more uncomfortable than I’d normally expect, I did a checklist of what may have been wrong. My first thought was COVID, but I knew that my chances of being exposed were minuscule. I had the realization that I was the reason behind my most recent flare – well, me and the stress of traveling, that is – when I rested a bit and some of the brain fog and exhaustion eased up. I allowed myself to get more stressed than normal because of all of the little things that were within and beyond my control: I was so worried about what travel looks like in a post-COVID world, how much tidying I needed to do before I left, checking and double-checking my travel plans, etc.,.

Stress is such a huge trigger, and it can be triggering us behind the scenes: I wasn’t actively feeling stressed but it still affected me. However, awareness and immediately implementing self care helped shorten the flare and made such a difference. Here is the video I made discussing my flare:

That’s it for today. Please continue to take care of yourselves, and I’ll talk to you all soon!

Fibro Friday – How I’m Getting Better Sleep
health · life curation

Fibro Friday – How I’m Getting Better Sleep

MstldelanoLeave a comment

Happy Fibro Friday, friends! I hope you all are having a great week and, if not, I hope your weekend is full of whatever you need to feel better.

This is a brief post, because I’ve already discussed the three biggest things I’ve been using to improve my sleep over on my Youtube channel. Anyone that has fibromyalgia, or any other chronic illness or chronic pain condition, knows that sleep is necessary to restore ourselves and to feel as good as possible. We also know that being in pain often means that sleep rarely makes us feel refreshed. So, anything that can improve the quality of our sleep can make the difference between feeling amazing and feeling awful.

The three things I’ve used that have helped me get deeper, more restorative sleep are weighted eye masks, magnesium supplements, and turmeric supplements. I’ve talked about magnesium and turmeric supplements (I’ve reviewed turmeric here and here) on this blog before, but I’ve never discussed eye masks. I’ll post my videos about each tool below, but if you’re short on time, here is the TLDW version:

  • Weighted eye masks help block out light (obviously), and the weight of it acts similar to weighted blankets: it provides a cozy feeling that helps with sleep. (I use the one by IMAK)
  • Magnesium is a muscle relaxer and a sedative, so it helps reduce pain while also giving you deeper sleep. (I use Nature’s Bounty magnesium supplement).
  • Turmeric supplements reduce inflammation and I take it at night, so it can do its work while I’m resting. For me, less pain means better sleep. (I use turmeric from Doctor’s Recipes and VitaBreeze: I alternate between the two).

More about weighted eye masks –

Why I use magnesium at night –

My daily turmeric and collagen supplements, and how the two I use measure up against each other –

These three things are the building blocks for improving my sleep, and I’m recommending these in hopes that they will help you, too! If you’ve tried any of these, or if you’re curious about any of them, please let me know in the comments below. Take care, and have a great weekend!

Fibro Friday – Addressing My Wrist Pain
health

Fibro Friday – Addressing My Wrist Pain

Mstldelano2 Comments

It’s been a while since I’ve done a Fibro Friday post, though I’ve been posting fibro videos over on my YouTube. Last month, I started physical therapy for my wrist pain that I’ve suffered from since 2018(!). I recall when I first had pain in my wrist, which was so intense that I went to the emergency room. The pain made it impossible to write more than a page in my journal at a time. Being unable to write with the same fervor that I used to was a heartbreaking experience and, while I wanted to get relief for the pain, I had far more pressing issues to address (like my other fibro issues). So I shelved the wrist treatment until recently.

So I started physical therapy. I posted this video on June 10th, and I’ve done some therapy sessions after filming this video. In fact, I’ve completed my series of sessions, and now I get to do the work on my own to continue rehabilitating my wrist. So I’ve seen even more progress since I filmed originally. Here’s the video discussing my physical therapy:

Now that I’ve completed physical therapy, I have a much better understanding of what my wrist needs to be its healthiest and strongest. I need exercises that both relieve stress as well as strengthen the muscles. The strengthening is the key point for me: the pain kept me from moving my wrist in a normal way, and due to this, I lost a lot of my original strength. Restoring my wrist strength is crucial to my healing journey. That, along with exercises to help with the flexibility and grip function, will help me to get back to my former glory.

I’m looking forward to giving you all updates in the months to come, as I progress in my healing journey. I’m excited to see how things go!

Anyhoo, that’s it for today. I hope you all have a great weekend. Talk to you all soon!

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Fibro Friday – Make A Fuss For Your Health

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Happy Fibro Friday! I hope you all are doing well! I apologize for the premature postings this week: I’ve been concentrating on Vlog-A-Day-In-May and hadn’t gotten a chance to do much writing over here. Rest assured, the prematurely posted blog will be fleshed out and reposted soon.

Today, I’m sharing a vlog that I posted several weeks ago. In this video, I discussed why it’s important to “speak up” when it comes to your health, especially those that are dealing with fibromyalgia. So many times, our voices are silenced because many medical professionals misunderstand or minimize our experiences. Also, when you suffer from chronic pain, it can be difficult to accurately relay your experiences to medical professionals, which makes it challenging to get diagnoses and treatments.

However, we should always continue to “make a fuss”, sharing how we feel with our care providers and the specialists that we work with. We must persist until our concerns are heard, and we get the treatment that we need.

Fibro Fridays: Morning Routine for Relief
health

Fibro Fridays: Morning Routine for Relief

MstldelanoLeave a comment

Happy Fibro Friday! I’m glad that we’ve completed another beautiful week, and I’m hoping that all of you are feeling refreshed and relaxed.

On this fibro journey, one thing that I’d been resistant to was routine. I enjoy doing things at the spur of the moment, and I used to feel that routines kept me from living a fun and spontaneous life. As it turns out, routine has been a saving grace for me. Between getting into the regular habit of taking certain prescription medications, having regularly scheduled visits to physical therapists, and creating better sleep hygiene, I can see where routine is critical to my pain management strategy.

I noticed that I had morning, mid-day, and evening routines that have helped a lot with minimizing my pain and discomfort. So, I took note of my current practices and decided to film my lists. For this week, I filmed my morning routine. You can watch the video here:

The four things I’m currently doing are as follows:

1) Drink 8-16 oz of room temperature water upon waking. I’m always so thirsty when I first wake up, so this is crucial to helping me gently start my day.

2) Complete 5-10 minutes of bed yoga and stretching. Again, starting my day gently is vital: part of keeping my nervous system calm is to avoid overstimulating routines, such as hopping right out of bed and throwing myself directly into the activities of the day. Gentle stretches warm my body up and get me mentally prepared for the day.

3) Moisturize my skin thoroughly. For me, a hyper-sensitive nervous system has meant more sensitive skin. Fabric that was once fine is now uncomfortable against my skin, but I notice that this discomfort is minimized if I’m well moisturized. I use a body butter formulated by one of my friends, but prior to that, I used a light layer of petroleum jelly. It works great and it keeps my skin from getting dry throughout my day.

4) Consume mostly liquid supplements. When I start my day, I’m not usually in the mood for solid or heavy foods. Likewise, I am almost never in the mood for pills or other supplements that cannot be sipped or added into beverages. I try to make most of my morning supplements some sort of liquid: I find these easier to digest and much more effective for me.

This additional point is something that I’d like to try in the upcoming weeks. I have noticed a little more tooth sensitivity than normal, so I’m going to try using a desensitizing toothpaste (like Sensodyne) to help with that. I’ll try it for a few weeks and I’ll follow up to let you all know whether it’s something I’m going to keep in my rotation.

So that’s my morning routine in a nutshell. I find that these steps help me to have a smooth, gentle and effective start to my day.

That’s all for today! Have a great day and a fantastic weekend, and I’ll talk to you all next week. Take care!

health · life curation

Fibro Friday – Let’s Talk About Soursop

MstldelanoLeave a comment

Happy Fibro Friday! I hope you all have had a great week. I’m recovering from a mild flare and I’m finally coming out of it, which makes me happy. This is one of those unavoidable things that comes with fibro: even when you’ve done your best to manage your symptoms, you may still have occasional flares. My flare was triggered by inconsistent weather patterns, because when the air goes from hot to cool to warm to cold, my body goes haywire.

Part of what really helps with my flare is getting enough rest, but, as you all know, rest can be challenging when you have fibro. One of the things I use to help get deeper, more restorative sleep is soursop leaf tea. There are a lot of benefits that you can reap from drinking soursop leaf tea, because it’s a highly nutritious plant. The fruit of the soursop plant is delicious and there is a strong case for it being antibacterial, antimicrobial, and anticarcinogenic. But we’re not talking about the fruit: the leaves are what interest me most (when it comes to fibro).

I first learned about soursop leaf tea from Debbie over at The Jamaican Cooking Journey. I’m inserting her video about soursop tea for your convenience:

When she mentioned that soursop tea is good for your nerves, I knew I had to try it! So I did, and I’m so glad that I took a chance on it. It helps me to sleep like a baby! Remeber, fibromyalgia is a neurological issue, not a musculoskeletal one, so by address nerve dysfunction, you can reduce or eliminate most of your symptoms.

Because I love science, here are some articles about soursop (graviola) that are worth checking out: WebMD article; Anti-microbial Efficacy of Soursop Leaf Extract (Annona muricata) on Oral Pathogens: An In-vitro Study; Anticancer Properties of Graviola (Annona muricata): A Comprehensive Mechanistic Review. I believe in doing due diligence and seeing what the science says, and I encourage you all to do the same.

I am posting my video that I did on this topic, and in that video, I share my results from consuming soursop leaf tea:

Please note, I am not a doctor and I’m not offering medical advice or solutions. That being said, I’ve enjoyed using soursop leaf tea as part of my regimen to encourage deeper and more restorative sleep. Try it and let me know your results!

health

Fibro Fridays – My FluRona Experience

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Happy Fibro Friday! A few weeks ago, I published two videos over on my YouTube channel, discussing how I had both flu and COVID simultaneously, and all of the shenanigans involved with that experience. I figured I’d share the videos over here, because you all may have missed my story.

So, let me tell you all how it started. I fell ill right after New Year’s Day, and it took several days for me to get tested (there was a huge demand for COVID testing post-holidays), and I couldn’t get examined for nearly a week after I first started showing symptoms. When I was finally able to get tested, it was confirmed that yes, I had COVID, but I also had the flu (yay me). More about that story, as well as my symptoms are in the video below.

A couple of weeks later, I went back to the doctor’s office to make sure that I was not contagious. I received a rapid test and a flu test, which confirmed that I was no longer sick with COVID, BUT I was still showing as positive for the flu. I was so confused: I should have been done with both viruses at this point. But, the fact that I was still showing as flu-positive opened the door to considering some additional things that were specific to fibromyalgia. Here’s the video discussing that, and I have a few takeaways that I’m going to mentioned after the break.

Here’s the thing: having any chronic health condition means that all of our internal systems are compromised, even on a minute level. But, as we all know, small leaks sink ships. Little “glitches” in our bodies, such as being in a slightly immunocompromised state, often mean that we get unusual results when we’re sick. Unusual outcomes include extended illness, unexpected side effects/symptoms, and biological/physiological damage that cannot be reasonably explained. Sadly, a lack of compassion when sharing our experiences with others is also something that we have to face when we’re recovering from sickness.

So, that’s the sum of my FluRona experience. I’m glad that I’m *finally* over it and feeling great. And I’m really happy that I get to share my experiences and, hopefully, give a little insight to someone else.

That’s it for today: I hope you all are doing great! Have a great weekend.

health · life curation

Fibro Friday – Looking Forward

MstldelanoLeave a comment

Happy final Fibro Friday! What a year this has been! I’m so glad that you all were able to join me on this 2021 health journey.

I assess quite a few different protocols (such as this one, this one, this one, this one and this one, and several others) and gleaned many tips that I can incorporate into my wellness routine going forward. I also vlogged my health revelations over on my YouTube channel (you can see an overview of my fibro videos in last week’s Fibro Friday post).

Photo by Ju00c9SHOOTS on Pexels.com

Now, as I say goodbye to 2021, I look forward to 2022 and how my health will continue to uplevel with the knowledge that I have. You’ll remember how my recent post about what you can expect from Bronze Butterfly mentions the value of implementation over the mere accumulation of facts. And in 2022, using the tips that I learned, seeing how my body reacts, and adjusting accordingly are my priority. I’m temporarily retiring my fact-hunting stance in favor of an action-oriented one. That doesn’t mean that I will refuse all types of knowledge accumulation; after all, I will still need to make observations about my health progress in order to know what kind of adjustments I need to make. But unless I hit a wall with what I know, I don’t think I need to prolong my stay in the research and learning phase.

So, onward and upward to good health and elimination of fibromyalgia symptoms! And I am wishing all of you a healthy, happy 2022, especially those that may be dealing with chronic pain and chronic illness. Take care, and I’ll “see” you all in 2022!

Fibro Friday – A Reflection On My 2021 Health Journey
goals · health

Fibro Friday – A Reflection On My 2021 Health Journey

MstldelanoLeave a comment

Happy Fibro Friday! I hope you all are doing well and feeling great as we wind down the year.

I’m reflecting on my 2021 health journey as respects my fibromyalgia, and BOY has this been a ride! I’m thankful that I filmed some of my experiences, and I’m sharing those videos here, with you all, as a kind of log of my journey. Here’s some of the Fibro Friday videos I’ve shared in 2021!

I started off the year by outlining some of the unexpected things that happened when you have chronic illness:

Next, I discussed a massage roller tool that I found gave me some relief:

Then, I shared a recipe for a body balm that helps tremendously with nerve and muscle pain (I love this stuff!)

Next, I discussed an action plan for improving my overall wellness.

I talked about things I wish I knew before I was diagnosed (or, that I wish someone had told me about the process of getting diagnosed:

Finally, I talked about my transition off of prescription medication and how I’ve been dealing with my symptoms:

Those are some of my favorite fibro videos for this year, and so excited to see what 2022 has for me! Next week, I’ll be sharing my health goals for the upcoming year and some ideas on how I will reach them.

Did any of you have a favorite video or topic related to fibromyalgia? I’d love for you to tell me about it in the comments below!

Have a great holiday weekend, and I’ll talk to you all on Monday. Take care!

health

Fibro Fridays – Is It Possible to be “Cured”?

MstldelanoLeave a comment

Happy Fibro Friday, friends! My apologies for the premature earlier posting: I was still typing when it posted LOL!

We made it through another week. Here in Virginia, we’ve enjoyed some warmer temperatures this week, and for that, I’m thankful! I hope you all are doing well and feeling great.

As I’ve been watching various fibromyalgia-related videos, I keep coming back to the question of whether this condition can be “cured”. It has been my goal, since I was first diagnosed, to be “cured” and completely free of the symptoms of fibromyalgia. As I understand it, a “cure” is not about managing the symptoms, but actually being completely rid of them.

Many of the experts I’ve watched have indicated that this is a lifelong, chronic condition. But I’ve also seen a handful of experts that believe fibromyalgia can be reversed, or cured. Here are some of the factors that contribute to whether an individual experincing fibro can reverse his or her symptoms?

  • The unshakable belief that fibro is a reversible condition.
  • A willingness to do a deep-dive into teh factors that created a fibromyalgia condition.
  • An openness to try a variety of treatments that go beyond simply using prescription medication.
  • The decision to live a life that supports continued wellness (no more self-sabotage)
  • An understanding that there may be a significant time investment involved

Anyone attempting to get close to a “cure” for this condition cannot delude themselves into thinking this will be easy or quick. Just as this condition can be rooted in a myriad of different factors, the solution can come from any number of adjustments or re-directions. If the solution was easy to figure out and implement, more people would do it, and there would be no need for me to analyze all these different protocols weekly, just to see if I can piece together a workable plan.

And even once you get a “cure”, there are often things that need to occur in order to maintain a state of wellness. So even the notion of a “cure” isn’t quite accurate: it’s a fix for a problem that can reappear if you aren’t careful. But, even a temporary “cure” is preferable to living with this condition daily.

In conclusion, “cure” is a bit of a misnomer, but the effects of a possible “cure” are worth the effort. It isn’t an easy path, but I’m committed to seeing it through.

That’s all for today, friends! I hope you all have a safe and comfortable weekend. I’ll talk to you all on Monday!