health · life curation

Fibro Friday – Do You Have Fibromyalgia? Getting Properly Diagnosed

Welcome to the very first Fibro Friday! I’m hopeful that this series will provide valuable information and tips for other fibromyalgia sufferers, and it’s my sincere desire that my experiences with fibro will help someone else get back on the track to wellness.

*** Disclaimer – none of this is intended as medical advice. Please consult a licensed physician for a professional opinion. ***

The singular toughest part of my fibromyalgia journey was getting a proper diagnosis. There are still a lot of care providers that don’t know how to properly interpret fibromyalgia symptoms, and as a result, patients spend a lot of time suffering before there is a conclusive diagnosis. Even once patients receive a diagnosis, there are some care providers that treat fibro as some “strange” illness that only requires antidepressants and stress reduction to “clear up”. There is even a subset of care providers that deny the existence of fibro altogether.

researcher

On your health journey, you may end up doing a LOT of research.

Let’s be clear: fibromyalgia is a REAL condition, with devastating symptoms. There is still a lot of mystery around why it occurs and how to best treat it, nonetheless, it is real. The challenging part is, again, diagnosing it.

So, how can you determine if you may have fibromyalgia? If you have any of the following symptoms for at least 3 months, then you may suffer from the condition (an asterisk beside the symptom means that I personally experienced it as a fibro sufferer):

  • body aches , soreness or general pain, especially in the back, neck and shoulders *
  • morning stiffness *
  • exhaustion that doesn’t seem to let up *
  • sharp pains or pins and needles sensations *
  • feeling “sick” but not suffering from a cold *
  • may experience virus-like symptoms (feels like the flu) but can’t seem to get better *
  • suffer from extra tiredness and muscle pain after only slight exertion *
  • sensitivity to heat or cold *
  • anxiety, depression, nervousness, moodiness *
  • headaches *
  • sleep problems (can’t get to sleep, can’t stay asleep) *
  • forgetfulness, difficulty concentrating *
  • stomach issues (bloating, nausea, constipation, excessive gas) *
  • painful cramps
  • restless legs syndrome

You may have just one or all of these symptoms. I know that I often felt like I had the flu: I’d often complain of feeling like I got “hit by a truck” and, while the feeling lessened as the day went on, the overall “sick” feeling never went away completely. I was so tired that I couldn’t get out of bed on some days, and the headaches would occasionally be so intense that they could stop me mid-sentence and have me holding my head and I’d seize up from the pain. Nausea, sensitivity to heat and cold (I can’t go into the frozen section of some stores without a jacket because the air makes my body ache), and sleep issues (waking up every two or so hours) are just the tip of the iceberg.

If you have any of the symptoms and suspect you may have fibromyalgia, your best bet is to start with your primary care physician (PCP) and ask for a referral to a neurologist or rheumatologist. Your PCP can do preliminary testing to rule out other conditions (anemia – which often exists concurrently with fibromyalgia – or thyroid disease come to mind), but an examination by a specialist (like a neurologist or rheumatologist) will give you more conclusive results. If your PCP’s testing reveals that you have some other condition, try the treatments for that first, and see if you get some relief/improvement of symptoms. If not, it may be time to see a specialist.

Fibromyalgia is diagnosed through the process of elimination. After autoimmune conditions and other diseases are determined to be nonexistent, then a patient can be diagnosed as having fibro. If it takes you months or years to get to this point, take heart: I started having the worst of my symptoms at the end of October 2018, and I was diagnosed by February 2019. However, these symptoms first showed up (in a milder form) back in 2014/2015, at which time I went to a rheumatologist. The rheumatologist tested me for lupus, and when the tests came back negative, she sent me on my way and didn’t bother to examine me for any other conditions. Imagine how much further along I could have been if this had been addressed properly back then! Ah well: here’s hoping my experience helps you to shorten the time on getting a proper diagnosis.

In short, take a look at your symptoms, and see how long you’ve had them. If it’s been more than 3 months, ask your PCP for a blood test and, if that comes back okay, then ask for a referral to a rheumatologist or neurologist for additional testing. Let the specialist know that you suspect that you have fibromyalgia: they’ll know which tests to do, in order to rule out other conditions.

I know this is a pretty long post, but the next ones will probably be a bit shorter. I just had to let it be known that you’re not crazy, your symptoms aren’t just “in your head”, and a proper diagnosis is the first step on your path to wellness.

 

life curation

Do You Know Your Black Art History?

In honor of Black History Month, I want to share some of my favorite Black women artists. These gifted creators established themselves during a time when most Black women were relegated to the roles of maid, cook, or caretaker. I love that these women dared to share their gifts and provide a diverse representation of Black womanhood.

Because I’m a geek for 3-dimensional art, I’m focusing on Black women that created sculptures. At one point, I was interested in sculpting as a profession: I even competed in art contests (and won a prize to boot!) So today, I’ll provide a list of notable Black sculptresses and then I’ll include some photos of their most famous works. There are literally too many of them to write mini-bios for each, but please take the time to check out a few of them. Their stories and their works are fascinating.

Tina Allen

Camille Billops

Erlena Chisolm Bland

Selma Burke

Fern Cunningham

Meta Vaux Warrick Fuller

Ruth Inge Hardison

May Howard Jackson

Harriet Forte Kennedy

Edmonia Lewis

Winnie Owens-Hart

Alice Patrick

Nancy Elizabeth Prophet

Augusta Savage

Beulah Woodard

Here are some of my favorite works by a couple of the artists above (I’m skipping Edmonia Lewis because I featured her in my Current Favorite App post, that I’m sure you all read and enjoyed):

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George Washington Carver, by Tina Allen (In the Missouri Botanical Garden)

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Bust of an Ethiopian Woman by Tina Allen

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Sojourner Truth by Ruth Inge Harrison

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Maudelle by Beulah Woodard (1937-1938)

The Talking Skull, 1939, Bronze

The Talking Skull by Meta Vaux Warrick Fuller (1939)

 

If I left out any Black women sculptors that you think should be added to the list, let me know in the comments below! I’d love for this to be a comprehensive list with lots of good links to information on how Black women have contributed to the world of sculpture.